Surgery Day – Pre-Surgery

Peter remains chipper as family and friends arrive at the hospital trying to grasp what is happening. It is a deeply sad and surreal scene. Peter understands that the doctors are going to have to check out his tummy later in the day, but the hospital staff assures him that “you’ll be asleep so it won’t hurt you at all”. “How do you know?”, he responds, as if to say that they don’t control his nap schedule.

He learns about the doctors’ masks and the anaesthesia mask and chooses the smell of his sleep medication — orange. He knows they’re going to poke into his tummy, but doesn’t know enough to get overly stressed. He makes hospital bracelets for his cousin Macy and cousin Buzz and builds a tower from legos to “protect the cat from the bad guy.” Peter is fine in his new setting. The adults are a wreck.

Pack your bags.

Today Peter had a CAT scan on his abdomen and the doctor didn’t like what she saw. A tumor was apparent on or around Peter’s kidney. Erika and Ty were ordered to get to the Twin Cities immediately and check into the University Medical Center.

Ty, Erika, and Peter arrived at the hospital and checked in. They learned that the initial diagnosis is Neuroblastoma. The next step is to operate tomorrow afternoon in order to remove as much of the tumor as possible.

Peter is in good spirits. The play rooms in the hostpital have fish tanks and lots of new toys to check out. He doesn’t comprehend exactly what’s going on. I wish I could say the same for the adults. I don’t think any of us are going to sleep much tonight.

My tummy hurts.

For a few weeks now, Peter hasn’t been feeling well. He’s been complaining of a sore tummy, he’s been tired, and has been vomitting on occasion. There was even a report of Peter being grumpy at daycare and not nice to his sisters, which is never the case.

When the symptoms didn’t subside, he was checked out by the doctor and soon after was in for blood tests. His blood showed that his sed rate was out of whack, so there is some kind of fight going on in his little body. Meanwhile, he has been losing weight and not always eating consistently.

Some pretty scary words were presented as possibilites for what could be going on and we soon had more results from the blood tests.
Lyme disease? No.
Lukemia? No.
Auto-immune disorder? No.

That’s good. But something’s still the matter.