Today, Labor Day, consisted of a trip to the Bronx Zoo and a barbeque at the Ronald McDonald house. Peter is doing pretty well, but progress remains slow. Ty and Erika try to line up activities that he’ll enjoy and wants to do, but Peter’s participation in the activities is minimal. His physical activity today was to walk down 3/4 of a flight of stairs, since he had to exit the stroller anyway and Mom and Dad encouraged him. His legs were burning before he could get all the way down and he refused to go any farther. At the evening barbeque, other kids were playing right in front of him, but leaving the stroller still didn’t interest him. That is unnatural for most any kid and especially for Peter.
The eating is definitely difficult, but Ty is strict about getting Peter 1400 calories per day. It’s just not optional. Peter is also off the fluid bag, so it’s very important that he’s drinking as well, and he’s doing OK with that. The nausea has been under control and he didn’t get the anti-nausea medication this morning, so the methadone may be taking care of all the withdrawal symptoms. Maybe he’s just about done with the methadone as well.
Tomorrow is a fairly big day at the clinic. They will meet with Dr. LaQuaglia and Dr. Kushner to assess Peter’s status and future. They will hopefully learn when they can book a flight home (this week?) and when they need to book a flight back to NY for additional cancer treatments. I’ll summarize the results of the meetings tomorrow when I know more.
I almost forgot. Erika bought tickets to The Lion King on Broadway. Peter will love that. Hopefully they’ll all love it.
Hi Guys – We have Been Thinking about you all weekend Long..
I want to tell you That Jake took almost 150+ Days to Really Regain all of His Eneregy after His Bone Marrow Transplat… I Know Peter will get it back.. He will get it all back .. It will just Take some time… Bone Marrow Transplat’s really take alot out our Kiddo’s Then ARDS ontop Of That..
He has Been Through alot – A Ton…
Lion King will be Great !!!
Love
The Cohen Family
We are happy to hear that Peter is doing so well. We have thought of you often and hope you will be able to return to Minnesota soon.
Peter it sounds like you are doing a good job at getting all those muscles back in shape. Have a great time at The Lion King.
Take care,
Andy, Jen, Jacob and Brady
It must be so hard to see your little guy not be his active self. Those drugs obviously stay in his system for quite some time. Keep the faith and know that this too will pass…one slow day after another!!! Thinking of you guys always, and praying for Peter everyday.
Love
Steve Glenda Josh Megan and Jacob
Keep up the fight Peter and Family,
We’re waiting to hear the Great News that you’re heading back home…….
Have a wonderful time at the Lion King………
Love to you all,
Uncle Ed and Aunt roz
Hi Eigners,
Remember our clock is not necessarily set ot God’s time. He’s never late, He’s always right on time. This is the time to really take one day and even one minute at a time and deal with that. The next day (or minute) will be there when you need it.
Prayers and God’s blessings follow you all!
Mike and Peg
Hi Peter! Hope you had a great weekend! It sure was hot here in Minnesota! Have you had nice weather in NYC?? We went to the State Fair on Sunday. It was fun – but very hot! Have you ever been there? Emily & Lily went into the Butterfly House…. very cool! Live butterflies were flying everywhere & landing on us…. (one even landed on my butt!) Emily & Lily each bought 2 caterpillars that are supposed to make their cacoons and then turn into butterflies. Lily got a little overly excited with hers — and she “shook them to death” (literally!). We think Emily’s will be OK…. maybe by the time they turn to butterlfies, you’ll be here and you can help us release them!? Silly Lily is waiting to see them turn into “racoons”!! (instead of “cacoons”) Wouldn’t that be something!!!!
We hope you continue to get better & better each day! We sure do think of you ALOT… and we are really getting excited to hear that you are flying home for a nice break before your next treatment!
Emily headed off to 2nd grade today like a brave girl! Pretty soon, you’ll be a big kindergartner!! Won’t that be FUN!!!!
Love you lots~
Jen, Ryan, Emily, Lily & Parker
Hi Guys – was thinking about you all weekend – hoping that you would get out of jail and that would help somebodies spirits and energy level. One of our prayers was answered and the other seems to be coming later. Very hard to have patience when all you want is to see that light in his eyes. We continue to cheer you all on – the finish line is over that horizon somewhere. I just know it…we all believe it. Keep on keeping on. THE LION KING – WOW!!! Take a nap before you go so you don’t miss a peep.!
Ah, Ty and Erika, keep up the great work, being supportive of your dear Peter and strong, knowing that calorie intake and other things he may not want to do that are best for him.
Peter, sometimes it just feels hard, doesn’t it? Little by little, your strength and happiness will get bigger and bigger.
Family: you continue to be held in love and support.
Hey Peter, remember your are an ALLStar and you need lots of food and drinks so you can get back in your ALLStar condition. Hope tomorrow goes well. You will love the Lion King enjoy enjoy enjoy. Ty and Ericka you are amazing ,keep up the great work you are doing. We are all still praying for you because we all believe. Love Ya Diane and family.
Pete-Man
You will love The Lion King!! I was lucky enough to see it in NYC a few years ago. It is still my favorite Broadway show! The costumes are amazing!! I can’t wait to hear all about it when you get home. We can swap stories!!
All my love and prayers
Lisa Beck
Hang in there Peter and keep fighting. We are all praying for you and your incredibly strong family. Enjoy the nightly parties with all the other kids at the Ronald.
Have fun at the Lion King! It’s one of Abby’s favorites.
The Conrads (Dan, Rachel and Abby)
Eden Prairie, MN
http://www.caringbridge.org/visit/abbyconrad
Dear Peter,
Your grandma Barb just sent me your web-site with all your journal entires/stories. You are God’s little Trooper!!!
I know we have never met but you certainly are in our prayers. Your Grandma Barb and my Husband Clair Opsal are first cousins. When we lived in Austin, Texas…your Grandma Barb and Grandpa Brian stayed with us for a week. We had a wonderful time together.
You have a special family Peter and I wanted to share with you, that our daughter Charise had cancer when she was younger. Her doctor’s became her friends and team leaders in making her body stronger each day. I heard you like baseball and your doctor’s are pitching homeruns to you each day, and praying that you will run each base with all the strength and energy that you can endure. Your a strong TEAM player. We are proud of you Peter and we will continue to cheer you on each day with our thoughts and prayers.
Love and Strength, Cyndy Opsal