Peter has finished his first round of antibody treatment! I am very happy to report he has had no pain (yet!) today, which also makes me a little nervous that he’s already reached a HAMA response. I don’t recall if it’s even possible for that to happen over a weekend like this, but it does make me wonder. We won’t know until a couple of weeks from now if he’s reached it or not. (they want him to get 4-6 rounds prior to reaching HAMA) His primary doctor out here did bring some unsettling news earlier today. He said they (the Neuroblastoma team of docs) have been debating now for about 5 days, and are continuing for another day or two. We were told awhile back (at U of MN) that there is something that shows up on Peter’s scans in the tumor bed area (abdomen). Because it did not light up on the MIBG scan, and after careful reviews of the scan, they believed it to be scar tissue, but said they would definitely be following it. Apparently the team out here is not totally comfortable with that. They are considering doing another surgery in about 3 weeks. If they do it, they will go in to see exactly what they find. If there is disease, I assume they would be taking it out if it’s safe to do so, but they would also radiate directly to the site while they are in there. We are not sure how to feel about this. They don’t want to put Peter through another major surgery, but they also don’t want to let any potential disease go undetected. They reminded us that neuroblastoma is a very sneaky disease, and the surgery they did at the U was quite complex, and the tumor was up behind the pancreas, wrapped around some things, etc. So we will wait-We hope to know in the next couple of days what the plan is. This would delay the next antibody treatment. We will update once we know more. As we know you are, please keep Pete in your prayers…
A journal of Peter’s journey
Dear Peter and Family,
We check in on you daily and keep the prayers flowing. As Ed and I know, the day by day waiting and evaluating takes a major toll on you all. We’re hoping that the “scar tissue” remains just that and no further surgery will be necessary. Stay Strong……..our thoughts and prayers are with you.
Love,
Uncle Ed and Aunt roz
Dear Peter and family,
We are praying for you and thinking of you. What a tough course your family has to navigate. We know you can do it. You have all shown such strength and fortitude.
It sure is hard to have uncertainty and changes of plan around each corner. It makes the decisions more complex, and harder for mom and dad to find the exact right path for their wonderful son. We wish you wisdom and even more strength!!
We will continue to keep Peter in our prayers. You are all so strong. Keep fighting!
Dan, Ann and Tate Richter
Seems like it is one hurdle after another doesnt it? Our heart and prayers go out to you all. Peter has a lot of prayers going out for him and with the support team you all have here be sure to lean on us whenever you need to.
Keep postive thoughts and so will we and God will watch over Peter.
Hopefully the tests will all come back that it is scar tissue. If we can help you out in any way please ask. We love and think of you everyday
Love,
Uncle Chuck and Aunt Rose
Good to hear you have completed the first round of antibody Pete!
We pray that the news the good doctors bring you is positive. Keep fighting those bad guys! Did you get to watch Justin Morneau in the homerun derby? Tanner was bummed that he didn’t win, but he did pretty good!
Hope to see you soon.
Love,
the Larsons
Hi Pete! It was so great to hang with you while you were out here!! You are a smart, handsome and funny guy. I miss you and your mom already!
I hope this note finds you home safe and rested. I’m praying that the doctor’s news is good. Stay strong and we’ll take each day as it comes.
Love you,
Jackie, your new bubble-breaker friend
Hello Peter and Family,
We are following your progress every single day. You are such a strong, brave boy. You keep fighting and stay strong.
We are your cousin Macy’s neighbors, you played with the last time you were at Macy’s house. When you get back from NYC come back and play kickball with all the kids. I bet you’ll kick a homer!!
While in NYC try to get to Serindipty, it’s a famous restaurant and they have the greatest milk shakes and the longest hot dogs you’ll ever see, and sometimes famous people hang out there.
We keep you in our prayers every night and we never miss a special prayer just for you. Hurry back over to Macy’s for some fun.
God Bless.
The Nahorski’s (Therese, George, Julia and JohnLuke)
Keep fighting Pete!!!!!!!! God is holding you and your family in his arms as you go along with your journey. Depend on His strength to help carry you through!! Keep focused on the end result of good health. Our prayers and thoughts are with you all.
Love
Glenda, Steve, Josh, Megan and Jacob
Welcome back to MN!! I bet it has never felt so good to be on MN soil…. and, I bet there were many, many hugs as you were reunited with Ellie & Kate after 12 LONG days away from them!
Peter- I am relieved that Round #1 is complete~ I bet you and your mommy & daddy are too! 🙂 Aside from the expected awful pain, it sounds like all went well and that your new team of doctors are giving you the best possible care in the world! With their knowledge, your strength and all the prayers being said for you on a daily basis, I have the utmost faith that you will continue to battle and win this fight. Just keep on fighting… when the going gets tough, you have to be tougher!
We are hoping that the “scar tissue” remains to be exactly that – just “scar tissue”…. however, if it is disease, it’e best to find that out now and let the great team of doctors do what they need to do to help you!
We’ve missed you all and are looking forward to some more fun filled days at daycare!
With much love and continued prayers~
The Kelley’s
Jen, Ryan, Emily, Lily & Parker
Erika, Ty, Peter, You people amaze me. I don’t know how you keep going. I get so tired and depressed just reading about you. Something or someone is really giving you strength. Keep it up and remember we are always behind you with our prayers. MJ
Hey Eigners,
We watch for updates daily. Seems to be an endless emotional rollercoaster you are on. Please know we continue to pray for you, for peace, courage for Peter, and wisdom for the doctors. Keep fightin Pete, and know you are in good hands!!
Hello Peter and Family!
You all continue to be in our thoughts and prayers!
Keep fighting!
Sheila, TJ, Josh and Madison Ask
Round one done. Your did a great job Peter. We are keeping you in our daily prayers. Sending lots of aloha from Kona.
Your friend,
Ruth
http://www.caringbridge.org/visit/ruthmersburgh
hi peter, i am going to the lake this weekend – hope to see you. hope you are feeling better. go twins.
your friend, jack b.
Hi Peter,
It sounds like you keep putting the troop in trooper and that you are in expert hands with your parents, grandparents, aunts, uncles, friends, doctors, and people you haven’t even met cheering you on. It sounds like extra prayers and cheers need to be storming heaven so we will do our best on our end. Keep up all of your hard work and enjoy your time at home with family. We are sure thinking about you.
The Bastians
Peter,
You truly are a trooper!!! Round one is complete and that is awesome! I was very sad to hear that you had to endure pain through all of this, you would think enough is enough, but if it means that this path thing is out the door than it is worth all the struggles. Your doctors know what they’re doing and they will figure out this “scar tissue”, you just stay tough!!!!! Our prayers for your entire team have never stopped Peter, we will be sure to add some extras in the days ahead.
With love and continued thoughts,
Your friends,
The Olson’s
Ty, Lisa,Paige,Drew & Hallsey
Dear Peter,
We keep you and your family in our prayers, and think of you often. Your good friends, the Bakers and the Fogartys, keep us informed.
God bless you, dear friend, and always remember that Jesus loves you!
Yours in Christ,
Pastor Chris Meier,
Lutheran Church of the Cross, Nisswa
Hey Ericka! Thinking of all of you, as always! Wanted to let you know about something I had sent to me from a paper in Wisconsin! It was an article about cancer patients being able to fly free to recongizned treatment centers around the country. Maybe you have heard of this or there is some other helpful things for you for your trips to N.Y., but here is the name,number, and website if you should need it:
Corporate Angel Network, Inc.
866-328-1313
http://www.corpangelnetwork.org
I have the actual article if you would need that for reason but I think their website should get you started!
Take Care!
Hello Eigners!
Hi Peter,
I graduated with your Aunt Michelle from RHS way too many years ago!
I have been watching your progress for quite some time now. I am praying for you and your family. I have heard many wonderful things about you (mostly from the Grillo family) and wanted to send you all my well wishes!
All the best,
Stephanie Anderson
What a great way to start out my Thursday morning… a hot cup of coffee and a smiling Peter Eigner gracing the front page of today’s Dispatch!! What a great article… I smiled and I laughed and then I got tears in my eyes as I read the very last line; “Don’t be scared. It’s going to be OK. They doctors are going to make you feel better. They aren’t trying to hurt you.” These words coming from a remarkable 5 year old boy… I couldn’t have said it better myself! I think I just discovered my new favorite quote….
Good luck at your ball game today, Peter! I look forward to hearing all about it in person! 🙂
With much love and endless prayers~
Jenni and family
Hey Pete-man! Congrats on finishing round one of your treatment! It wasn’t that long ago that we were all congratulating you on round one of chemo, look at how far you’ve come! Hope you’re enjoying some time with your sisters! Stay strong, buddy, we’re all so proud of you! Love and prayers, Maggie
Hey Pete, and family!
Just popped on here after reading that great article in the paper, you all looked great, and it sounds like you’re all still feeling strong and pluggin along. I don’t know how you do it! Loved the quote from Pete at the end, such a brave boy. Erika and Ty you must be sooo proud of your little guy! ((hugs)) to you all!!
Peter, if you’re in soccer this fall, we just might see you out on the field! My 4 year old Logan, and my 6 year old Austin both want to play this year too. Take care guys, my thoughts and well wishes are with you!
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http://www.ashersfriends.blogspot.com
Good Morning Peter – Wow – it sure was a surprise seeing you yesterday at Jenni’s!!! You are looking just as handsome as ever Buddy!!! Too bad about the blue hair, though!
Ty and Erika – gosh, he looks so great!!! He informed me he must not have wished hard enough – that’s why his hair didn’t grow back blue! What a doll! Jen shared your feelings about the NY trip – you are so in our thoughts! Soon…. hopefully VERY soon, it will be all memories. The girls, too, are such little angels. Kate looks so very much like Peter, but talking with her nuk in mouth is an absolute remembrance of Ellie!!!
You are always in thought and prayer – keep up the tremendous strength! As always, we are here.
Peg and Ron