I can’t believe we’re only half way to 100 days! It seems like Peter’s transplant was so long ago! He is doing well. He did get out of the hospital Sunday and we had lots of fun on Ellie’s birthday. The beautiful weather has played a big part in our fun this week.
I feel that things are starting to get busier again. Ty took Peter to the clinic this morning and his labs were good – getting higher. They let us stop the TPN (iv food) which is great because it’s a bit of a process each night and it’s a pain for him to tote around when he’s awake.
Apparently they are scheduling scans for Peter tomorrow and Thursday (CT and MIBG I believe). This immediately put a knot in my stomach but it’s great that we’re getting to where he will need periodic testing to see if there is anything going on. We believe that we will have even more to celebrate than birthdays on Friday evening! He will have his labs/counts checked again on Friday and barring any changes, he is scheduled to start radiation on Monday! Radiation will be daily, M-F, for 3 weeks. Within a few weeks we should also be able to find out if Peter will be able to get antibody treatment at the U of MN or if we will be travelling back and forth to NY. So after writing this, I guess the combination of these things is why i’m feeling a little anxious – just a lot of things going on at once!
In the meantime Peter and Ellie are enjoying lots of fun in the sun wearing loads of sunscreen!
A journal of Peter’s journey
Erika & family,
I can certainly see why you are feeling a little anxious! Peter has done so well through this whole process I can’t imagine that it will be any different through this phase of tests! We continue the prayers and on-going thoughts as each day passes, getting closer to 100!
What great weather you’ve had to enjoy……….Peter I am so happy to hear that you and your mom and your sister had great birthdays, Drew’s birthday was in April too…………Good month huh?!!!!!!!
You continue to gain strength and we will be thinking of you lots on Friday and hoping that all remains on schedule for Monday!
Take care and Good Luck this week!
Much love from The Olson’s
Ty, Lisa, Paige, Drew & Hallsey
Peter and family, I cannot believe you are half way to a hundred. We continue to pray for you and your family. I know you still have many challenges ahead of you, but your strength and courage will continue to help you through those difficult times. I am glad that you have been able to enjoy this wonderful weather. Enjoy your celebrations on Friday. God Bless, Cheryl Bailey
Hey there “BIG-GUY-WHO-IS-ALMOST-FIVE” 🙂 Can you believe that you are almost one whole hand’s worth of fingers?? High five on that!! (ha-ha!!…. get it? high FIVE?) Ok, so maybe I am not as much of a comedian as you are!! 🙂 Anyway – I am so thrilled to read about how well you are doing. I always knew in my heart that you were an amazing kid, but reading it in black & white always makes me get the chills!! You have been so brave and so courageous through out this 8+ month battle. You just keep on keepin’ on and I expect to have you back for some fun in the sun at daycare later this summer??
Miss you, sweet Peter!
Love, Hugs, Kisses and Prayers-a-Plenty~
Jenni, Ryan, Emily, Lily & Parker J.
Hi Peter-
Glad to hear you have been able to enjoy the nice sunshine outside. We just learned about a little boy that also has the same ucky thing that you have. His name is name is Logan Fogarty and he will be one year old this month. He lives near Pequot Lakes and has to go to the same hospital that you go to so he can get better, just like you. It sounds like he spends a lot of time on the 8th floor of your hospital. If you bump into Logan, who has a nickname of “little cowboy” (his parents are Ryan and Megan) maybe you could give him a high five or talk to him about the Twins or anything else that guys like to talk about. You are such a champ. We know he would like to play with you, even though he is only one. Keep getting stronger and better. Jim, Laleen and Jared Goerges
P. S. Have a very, very HAPPY BIRTHDAY!
Hi Eigners….
Peter is astonishing …as always……..
Please remember that we are here for anything you may need. Housing overnight folks or just a day on the lake …in the sunshine. Just let us know. Take care of each other..
Love,
Uncle Ed and aunt roz
HAPPY BIRTHDAY TO YOU …………
Hapy Birthday to you Peter. Enjoy your day. Half way to 100… way to go. Keep up the fight you are a winner! We believe in you.
The Musielewicz’s
HAPPY BIRHTDAY PETER!!!!! #5 WOW
Sorry about my last email……………I thought you already had your birthday in April. Silly me……..
Enjoy your day and have lots of fun!!
Love from the Olson’s
Ty Lisa Paige Drew & Hallsey
Hi Peter:
I just wanted to Thank you for agreeing to be the Relay for Life Youth
Honarary Chairperson. We are very excited about having you be apart of our Relay on July 27th. Hopefully, you and alot of your family and friends will come to our event that evening. I know you will do a great job of showing what a “fighting spirit” you have.
Karen Owen
Hi Peter…. I was just reading your entries and wanted to let you know that I am SOOOO excited that you are the honorary youth chairperson for this year’s relay for life. I used to do the relay for “Team Target” years ago when I worked there. It is alot of fun & obviously for a great cause. I would love to do it again this year in honor of you!!!!!! Maybe we could start a “Daycare Team”! 🙂 I would love more information regarding this year’s event!
Love~
Jenni
Peter,
Hi buddy, just wanted to know we are thinking about you. You are an amazing young man! I will be cheering for your Twins. Hope you are doing well. Enjoy the hockey playoffs as well and let me know who you are cheering for.
Tony g
Good Morning Big Guy – and a very HAPPY BIRTHDAY TO YOU!!! Have lots of fun today on your special day!!! Wow – I can’t believe you’re 5 years old already!! I remember first seeing you at Jenni’s – I think you were about 16 or 18 months old is all?!!! Your were an absolute little dolly then as you are now – such sparkle in those fabulous eyes of yours!!
Hope you’re feeling good – and enjoy the weekend, too. (sounds like rain back here, but we sure need it!!)
Thinking of you all!
Peg and Ron
Ah, bummer! Looks like Papa & Monga Allord beat me to it! Darn her! I was hoping to be the first one to wish you a happy birthday!! Well, it’s officially here…. MAY 4th, 2007 – your 5th birthday!!!! YEAH!!! I, too, remember when I first met you at 16 months old… you were an absolute doll! Incredibly smart (clearly speaking “nice to meet you” at 16 months old!!), incredibly adorable and incredibly special. Even at the ripe ol’ age of 5, you are still a doll, still smart, still adorable and still awfully special! I imagine you and Ellie will have quite the celebration tonight! What kind of cake are you having? (Lily’s birthday is in May, too…. whenver we ask her what kind of cake she wants, she says “green cake”…. hmmm….)
I will be thinking of you all day today and sending many, many happy birthday thoughts to you! I hope you have a truly wonderful day…
With much love, lots of birthday hugs-n-kisses, and lots of prayers!
Jenni, Ryan, Emily, Lily & Parker
HAPPY BIRTHDAY Peter!!! Keep up the fight!! enjoy the sun!! And cheer on those Twins!! They need your help!!!!
Take care!!
Hi Peter,
Well it appears that everyone is standing in line to wish you a happy birthday! We sure hope you have a great one! Now that you are 5 years old, you are just that much bigger and stronger, and can surely take the path thing down. We’re always cheering for you.
Rich and I teach Sunday school at our church, and each month we have a new virtue that we teach the kids. This past month the virtue has been HOPE. HOPE is believing that something good can come from something bad. I think there is so much truth to that! Your example has brought so much “good” to all of us who are following your journey. You have made quite an impact on everyone young man, and that will never be forgotten. Have a fantastic birthday, keep up the good fight, and always remember HOPE!
Sincerely,
Amy, Rich, Jake, Callie & Kira
HAPPY BIRTHDAY PETER!
Wow Mr. Five Year Old. How does it feel to be five? Does it feel different than four. One thing is for sure! You are always the same cool kid, champ of champs, amazingly strong, super duper awesome trooper whether you’re four, five, or a hundred and three. Have a great day Peter! You and Ellie enjoy your parties.
The Bastians
HAPPY BIRTHDAY TO PETER!!!!! God Bless Him for what he is going through and keeping such a smile on his face when we see his picture on your update pages. Hope the party was wonderful for ALL.
Bob & Jeanne Boche