It hardly seems possible that Peter is already due back in NY this week. He and Erika beat the snowstorm and flew out Monday afternoon. Peter was less than thrilled about going, he cried in the morning and said “why do I have to keep going to NY” We think as he gets older, he understands more about what this is all about. Anyway, he got settled down and went to school for a few hours and then they flew out. He got a headache on the plane and threw up when he and Erika got to the Ronald McDonald House in NYC. He slept for a long time and was much better this morning when I talked to him. He told me, “Dad it is like summer out here, it’s like 30 or 45 degrees.”
He and Erika will go to the clinic today and Wednesday and he will have blood work, CT scan, MIBG test, Brain MRI, Bone Marrow Biopsy and other tests over that time. All in all he does remarkably well considering all he goes through each visit. Kate, Ellie and I will hold down the fort back home and see if we can’t shovel a little snow while they are gone. We had 8 inches yesterday!
Also, please pray for Erik Ludwinski and his family. Erik is 21 and was diagnosed with neuroblastoma at age 4. He was NED for 15 years, then he relapsed. For the past 2 years he has been getting many different treatments. Recently it has has progressed and is not responding to any treatment and Erik and his family are doing an incredible job handling his situation. Erika and I went to see him Monday, it was an incredible experience. Erik was interacting with all his visitors and his attitude was amazing. He and his family are spending whatever time he has left enjoying each other and getting the most out of every day! His mother is one of the most positive people I have ever been around and she has been unbelievably helpful to tons of families affected by neuroblastoma.
Finally, thank you for keeping Peter in your prayers this week while he is in NY. We are so blessed to have so many people praying for Peter and our family.
Ty, Erika, Peter, Ellie and Kate