Month: January 2009

We just finished getting all of Peter’s test and scan results back from New York. Brain MRI-CLEAR, Head/Chest/Abdomen CT-CLEAR, Bone Marrow-CLEAR, Urine Screen-CLEAR, MIBG Scan-CLEAR!!! We also found out that his HAMA level came way down, so he could be getting another round of anti-body treatment before we are due back for scans and tests in April. Thank you all so much for your thoughts and prayers, you will never know how much strength they provide us as we wait for test results. With that said, the trip to NYC had to be a succes right. All in All it was a pretty quick and smooth trip. The highlight for Peter was learning to play ping-pong in the playroom. He and I played everyday and he really started to hit the ball pretty well. Especially since he could not bend his arm all the way due to his temp IV line. He got to paint a jewelry box for Kate and Ellie, which has since been destroyed by Kate! He also made individual soap figures for Erika and he girls, they really liked that.

I also have to share one neat story from out there. Peter and I were in the playroom by ourselves on Monday morning, when a woman and a 5 year old girl came in. They sat at the table with us while we were playing a game. After talking with them for a while we found out that the girl’s little brother was being treated for Neuroblastoma. Her grandma then asked me if “Peter had a sibling that was being treated out here?” She was very surprised when I told here “Peter is the one who has Neuroblastoma.” Peter then said “I HAD Neuroblastoma Dad.” I don’t know who felt better about what he said me or the gramma who could see that there can be a positive outcome to this awful disease!

Anyway, I thought that was a pretty cool thing and thought you all would enjoy it. Well better get going, we have a busy Saturday ahead of us.

Thanks for everything,

Ty

Hello All,

Peter and I will be heading to NYC tomorrow for his 3 month check up, which will consist of CT scans, MIBG scans, blood work and a bone marrow biopsy. This is the first time that Peter and I have gone out to NYC without Erika or the girls. I have to admit I am more than a little nervous. I am only nervous because you never know what the results of the tests are going to be. Erika and I are feel great about where Peter is at and when people ask us “how he is doing?” We respond by saying “great.” He is doing great in school, gaining weight, has a ton of energy and has a very good appetite. So we are very, very thankful for how he has responded to his treatment.

The kids have adjusted very well to the move back to the cities and they are very active in a ton of different activities like hockey, gymnastics, swimming, school, watching hockey and playing with grandma’s, grandpa’s and cousins. Peter and Ellie are going to play in an exhibition game tomorrow at the US Pond Hockey Championships. They are both very excited about this, even though it is supposed to be very cold. We will be sure to let you know how things turn out.

As for Erika and I, we are plugging along. Erika is thankfully very busy with work at Tradition Mortgage. With interest rates being what they are she has been working very hard and doing a lot of business. The team I coach is doing very well, we are currently 13 and 3, with all 3 losses coming by one goal. We have a great group of kids and coaches and it is fun to be at the rink everyday.

Finally, we also want to let you know how much we appreciate you all continuing to pray for Peter and for keeping our family in your thoughts. This has been very difficult journey and we would not be where we are today without the help of all our friends and family.

God Bless,

Ty, Erika, Peter, Ellie and Kate