PLEASE say a prayer for our dear little friend Gustavo-Alexis (caringbridge.com/gustavoalexis). We met him, his little brother Miguel and their amazing parents Terri and Big Gus in NY. Little Gus is a beautiful boy and his parents have given everything of themselves to help him beat NB; they have airlifted him home and his family is surrounding him. This breaks our hearts beyond belief and we know the power of your support – you have pulled us through some awful times.
While we’re asking, our good friend Mary from the U is still waging war against NB and is undergoing a new chemo combination. We love this family and want Mary to beat this thing once and for all – she’s a warrior and we are praying for her tests this week to show improvement, or better yet, be totally clean!
Thank you – Ty and Erika
More positive test results!
We recieved the results of Peter’s Bone Marrow and Urine tests, and they both came back clean! Thank you all so much for the prayers and positive energy! We are off to Peter’s last baseball game of the season, and then his team is having a pool party, it should be a lot of fun. Thanks again and have a great weekend.
Blogging for Kids
We’re still waiting for the final test results, but I want to let you know about a Blogathon that will be starting this Saturday, the 26th. The owner of this site will be blogging for 24 hours straight in order to raise money for Band of Parents, a Neuroblastoma charity.
She will be featuring two children every half hour on her blog and Peter will be featured at 12:00 AM on the 27th. This is the second year she’s done this. Thanks, Nikki, and good luck!
Link to the Blog
http://bloggingforkids.shebecameabutterfly.net/
Link to Donate
http://www.change.org/myfundraising/BoPBlogathon
GREAT Results So Far
Hello all. Thanks for checking in on Peter’s progress.
The results of Peter’s CT Scans came back on Wednesday and they are clear. His echocardiogram didn’t cause any alert. The bone marrow biopsy results will take a couple days yet. In summary, Peter still shows no evidence of disease.
He is also HAMA negative. This means that he can resume with the 3F8 antibodies soon. The antibody treatment is meant to help keep the cancer at bay by causing Peter’s body to fight against any malicious cells. I believe Ty and Erika are in the process of scheduling the next round of this treatment in NYC.
Because Peter and family are living at my house temporarily, I’ve seen a lot of the little guy recently and he looks great. He had a few bandages from the testing to show off, but is as smiley as always. His focus remains on his next baseball game. Hopefully we’ll hear that his bone marrow is clear as well and he can continue running around the diamond.
Testing in Progress
Erika and Peter flew to New York City on Sunday evening for Peter’s quarterly testing. This is always an anxious time. Yesterday Peter was measured and weighed, some blood was drawn, but not much else. He weighs more than he’s ever weighed and he’s grown a centimeter and a half since last visit. I think these are good signs.
Today and tomorrow he will go through the big tests: Scans, bone marrow biopsy, an echocardiogram, and more. Some results should be fairly immediate, while the bone marrow biopsy usually takes a week or so.
I’ll keep you posted.
Changes abound
It has been some time since we have posted, and there are many new things to update. First and foremost, Peter is doing great! People always comment on how great he looks. He is playing baseball in Lakeville and having a blast! He asks me the day before he has practice or a game “how many hours till baseball?” Sometimes my answer is “oh 30 hours bud.” He has made a lot of new friends and really looks forward to playing. In case you don’t know, Lakeville is in the Twin Cities, yes we have made the move from the North Country and made our way back to the metro. I have taken a coaching position at Eden Prairie High School and Erika will be working in the Edina office of her company Tradition Mortgage (call her, it is a great time to buy a house). It was a very difficult decision, as we have spent 90% of our married life in Brainerd and all our children were born there. But the move back to the metro really was a great opportunity for our entire family. We will never forget our 9 years in Brainerd and we will be back often. We have yet to decide where in the metro we are going to live, but because of the current real estate marketk, we will have MANY options.
Peter did a great job as chair person of the Rosemount Relay for Life, and the entire Eigner/Hanson clan had a great time. Then the party at Trent and Melissa’s was great and everyone had a blast. Thanks to them for hosting, for Cary and Perri for the entertainment, and to all our friends who showed up. Kate and Ellie are having a ball being in the metro, as they get to go to a new park just about every day. They also get to see there Gramma Mary, Aunts, Uncles and all their cousins a lot more, so they think that is cool. We also had a great 4th of July in Brainerd, and spent 4 fun days at Gramma and Grampa Poopsters.
Peter and Erika are going to New York City next week for his 3 month check up and scans. Hopefully while he is out there he will be HAMA negitive and be able to get another round of the anti-body treatment soon. Even though Peter’s appetite is great, energy level is high and seems to be doing great, going out for the scans and test is always very nerve wracking, as you never know what is going on inside. Thank you all in advance for your continued prayers for Peter, we truly could not be doing this without all of you! Well that should get you caught up a little, and again thanks for continuing to check this site and your tremendous support.